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Guide to Intimacy with Arthritis
Question
"I cannot even imagine having a sexual relationship at
this point . . . it even hurts to hold hands. As much as I would like to
experience sexual contact, I would be too miserable to engage in it.”
Answer
Being in too much pain to even think about making love is a
signal to talk with your doctor about your treatment plan. Perhaps it’s time
for a different or stronger medication, a revised exercise routine, or other
medical adjustments to improve pain control.
Still, it’s important to get rid of the exhausting,
athletic and unrealistic expectations of lovemaking created by the media. Sex
can be a gentle, tender experience that heals. In fact, satisfying sex doesn’t
always have to include sexual intercourse. Romance and intimacy can be just as
satisfying. Be creative. A gentle massage from your partner during times of
fatigue and pain can be very romantic.
Psychologist Jackson Rainer, PhD, suggests redefining
sexuality as “an energy that is healing, warming, and operates more outside of
the genitals than in one specific place on the body.” With that understanding
of sexuality in mind, you are almost never too miserable to experience sexual
contact.
For example, holding hands in a darkened movie theater is
pleasurable for most people. “Skin-to-skin contact is very important,” says
Rainer, “but it doesn’t have to happen in some prescribed way. If it’s
painful to close your hand, or if your partner feels pain when you hold her
hand, then use an open hand to touch, to rub.” Let your partner brush her fingers lightly over your palm or inside your
arm. Ask him to rest his hand gently on your knee.
You can’t fully enjoy your sexuality if you’re afraid
of getting hurt. It is vital that a couple coping with chronic pain – both the
person in pain and the partner – has a clear, shared understanding of what
feels good for each person and what causes discomfort.
Rainer recommends “sensate focusing,” an experience
that allows each partner to develop a “road map” of the other’s body. In
the privacy and comfort of a warm bedroom, one partner slowly explores the
other’s body with touch and with questions, in order to find out what feels
good, what causes pain, what is desirable, what is undesirable. Each partner
gets a turn. The goal is to explore rather than to be involved in any type of
activity that leads to orgasm: The only rule is that you don’t touch genitals.
In this way, you begin to develop an intensely personal language of touch.
As a practical matter, plan your pain medication schedule
with your lovemaking date in mind. Take your pain medication so it peaks at the
time you anticipate a sexual encounter. If you take your analgesic every 12
hours, for example, plan to be four to six hours into a dose.
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