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Can You Get the Care You Need?

A study shows that seeing a rheumatologist can improve your care, but can you find one?

According to an article in the August 23, 2000, issue of the Journal of the American Medical Association (JAMA), care by physicians who specialize in rheumatology results in substantial improvements for people with arthritis. But, the Arthritis Foundation says getting that care may be difficult as the number of specialists rapidly declines and the number of people with arthritis increases. Currently, 46 million, or one in three, adult Americans have arthritis and chronic joint symptoms. This number will continue to grow as baby boomers age.

"This is an important study that highlights the shortcomings in healthcare of people with rheumatoid arthritis, and the importance of specialists in improving care," says Dr. John Klippel, medical director, Arthritis Foundation. "The findings of the study highlight a serious concern about the limited number of rheumatologists that are available to treat people with arthritis and other related conditions."

As far back as 1990, the Arthritis Foundation and the American College of Rheumatology (ACR) predicted a need for 6,500 rheumatologists by the year 2000. Now, 16 years later, there are just over half that many specialists to treat the 46 million Americans with arthritis and chronic joint symptoms. Pediatric rheumatology has one of the smallest number of doctors of any pediatric subspecialty with only 162 board certified pediatric rheumatologists in the U.S., of which 90 percent are clustered in and around large cities. There are even entire states, like Idaho and North Dakota, without a single pediatric rheumatologist.

To address this issue, the Arthritis Foundation is publishing an article in the September/October issue of Arthritis Today titled "Where Have All the Doctors Gone?," which draws attention to the frightening reality of the increasing shortage of rheumatologists. Never before has medicine had so much to offer people with arthritis. Yet never before have there been so few doctors to prescribe and administer treatment.

"We promote early and accurate diagnosis and early, aggressive treatment of arthritis, but it's difficult to get early anything when there's not a doctor around, or when every doctor in town is too booked up to see you for months," says Dr. Klippel. Due to the shortage of rheumatologists, rheumatoid arthritis is often misdiagnosed or patients must wait months to see a specialist -- precious time lost in treating the disease and slowing its progression.

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